It has been months now since Ayah Mithika Lundt’s parents managed to raise millions to get the world’s most expensive drug for her treatment.
Ayah was diagnosed with a rare condition known as Spinal Muscular Atrophy(SMA) and she had to get the drug before she turned 2 years, to save her life.
Children suffering from the condition can not walk or stand unaided, they have breathing and swallowing difficulties and most of those children don’t survive past early childhood.
The young girl was to undergo a gene therapy known as Zolgensma, at a cost of Kshs270 million.Â
Her parents, Mary Mithika, a Kenyan and her father Frank Lundt, a Danish, called upon well-wishers to help save their daughter and lucky enough their wishes were granted.
On August 31 2021, the couple announced that they had managed to hit their target after 33 weeks of fundraising.Â
Ayah went ahead and began her treatment in San Antonio, USÂ a week later. So far the treatment worked and Ayah is able to move and pronounce some words.
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She turned two years old in mid January and she has started attending school according to her parents.
“Ayah started school!!It’s been a week now and she is doing great! She loves kids and she has already made a friend. We (the parents) have our worries but this girl is unstoppable! I am learning so much from this little girl…have a lovely week lovely people,” read a post on Ayah’s Instagram account.
The news was celebrated by her online family who could not believe that she had gone that far.
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